When I say I hate shopping people usually say, but you get clothes! What I really mean is I hate trying on clothes. But if we’re going grocery/school shopping, well, then I really do hate shopping. Its not because my mom doesn’t make a list or because she will spend 5 minutes in the veggie section, its not even because now and then she has me run out to the car cause her debit card has no money on it. Its because when we go shopping, I’m stuck with 2 younger siblings. Now my youngest sibling is an average 5 year old. Someone gives him candy, then he’s on a sugar rush for an hour then he drops like a 5 year old after a sugar rush. My other younger brother, well average is not a word to describe him. He’s 9, and on sugar or off sugar, he runs. Or skips, like how you imagine Ramona qiumby skipping to kindergarten. Shopping, at subway, at home, at the bank, even when my friends are around, which is seriously embarrassing. The 9 year old runs (skips) off, and the 5 year old follows him. And I usually find them at the pharmacy talking to the pharmacist about how we don’t get shots because our oldest brother got them several times and he got seriously sick.
All in all? Its. Very. Exhausting.
I just watched the most heartbreaking video ever. I have never connected with someone so much in my entire life. I don’t know this guy at all. Never met him, but we have one thing in common. We have both lost people to the disease ALS. We have both watched those people die. All over the world celebs and everyone else are pouring ice water on their heads to kill this bitch. Hell I did it and although it made me scream, I am glad I did. If you read my recent posts you know my grandma was killed by ALS. Its been almost 2 years since she died. When she died I made myself promise that every time I earned 50-100 dollars I would donate it to an ALS association. My friends think I’m this confident girl. But really, when no one can see me or hear me I cry. Hell, right now I crying, because I’m afraid I could get it and because it killed the only real friend I had for 5 years of my 14 year life. Only 30,000 people have this. Hardly anyone knows about it. Out of the thousands of wonderful people it picked my grandma. She died at age 62. And everyday I feel like punching a hole in a wall so I can see if I can feel the pain she felt. When she couldn’t walk anymore, I was there. When her hands stopped working, when she couldn’t button her shirt, when she couldn’t dial on the phone, I was there. I watched her die. There was nothing that I could do to save her. All I could do was button her shirt, feed her through her feeding tube, make her laugh a little, but there was never a time when I was ever going to be able to stop the pain or make it all better. I watched her stop breathing. I watched my grandpa cry. I watched my brothers cry. I watched my uncle cry. I watched my dad cry. And yet I couldn’t cry, not wouldn’t cry, couldn’t cry. I refused to except that she was dead. I watched my family cry and I couldn’t do anything about it not even cry. This bitch that killed my grandma, I have to kill it. If I don’t either it, it will kill me or the pain of knowing I couldn’t do anything will kill me. That promise I made, I’m not breaking it. So every time I make 50-100 I’m donating. I might need new jeans, I might want a new purse. But there is nothing I need more than to kill this bitch.
Please excuse my language, I really do want nothing more than to kill ALS.
Ok, so, about three posts ago I blogged about my cousin Michael. If you read the blog you know that, Michael is 12, he has scoliosis, he is either in his wheelchair or in bed all day, he cannot speak with his mouth, he uses a iPad to communicate, you would also know that he needs treatment, and that his family has a fundraiser going on go fund me, a website that raises money for people who need it. His family have raised about $1,230 and their goal is $30,000. That’s how much the treatment costs. $30,000. Yes that’s a lot. And yes we have only raised $1,230.
But that is only because not a lot of people know about it. I want you to put yourself in Michaels parents shoes. Better yet, put yourself in Michaels shoes. Your in a wheelchair all day every day, wherever you go. You can’t speak. Your fed through a tube in your stomach because you cannot swallow, and the only thing that goes through that tube are homemade smoothies, water, and liquidated vitamins.
You cannot sit comfortably because you back is bent forward. You cannot hold anything with your hands. You have ten other siblings. You feel so helpless, yet your mom and dad have never given up. You bring joy into their lives. Just about the only thing you can do is smile or frown. And your in pain, every day, twenty four hours a day. If your mom doesn’t think you need something then you have to sit and sit and sit until your mother anticipates that you need something. Now back to who you are. You may not be able to end world hunger or make world peace or adopt a child. But I know and so do you that you can donate $5 to make one preteens life a whole lot easier. If everyone who follows my blog along with the people I know, donated $5 we would be at our goal. So please for the sake of the life of one child and for the love of his many family and friends, donate $5 and share this blog.